Summary

Eligibility
for people ages up to 17 years (full criteria)
Location
at San Diego, California and other locations
Dates
study started
estimated completion

Description

Summary

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Official Title

Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)

Keywords

Narcolepsy

Eligibility

You can join if…

Open to people ages up to 17 years

  • Any child or adolescent with a physician-confirmed diagnosis of narcolepsy
  • Age less than 18 years
  • Willing to participate in the Registry and complete the informed consent form
  • Able to participate in English based registry

You CAN'T join if...

  • Age 18 years or more
  • Fail to complete the informed consent form

Locations

  • University of California San Diego accepting new patients
    San Diego California 92093 United States
  • Phoenix Children's Hospital not yet accepting patients
    Phoenix Arizona 85016 United States

Details

Status
accepting new patients
Start Date
Completion Date
(estimated)
Sponsor
Jazz Pharmaceuticals
Links
Online Patient Enrollment System
ID
NCT04899947
Study Type
Observational [Patient Registry]
Participants
Expecting 500 study participants
Last Updated