CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed.
The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email email@example.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.
Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)
You can join if…
Open to people ages up to 17 years
Any child or adolescent with a physician-confirmed diagnosis of narcolepsy
Age less than 18 years
Willing to participate in the Registry and complete the informed consent form
Able to participate in English based registry
You CAN'T join if...
Age 18 years or more
Fail to complete the informed consent form
University of California San Diegoaccepting new patients San Diego California 92093 United States
Phoenix Children's Hospitalnot yet accepting patients Phoenix Arizona 85016 United States